Not everyone with epilepsy can hide it. Some of us have grand mal
seizures and if those are occurring often, it's hard to hide it.
Fortunately that is where I got lucky with my epilepsy. I don't have
grand mal seizures, my seizures are very quick and don't happen often.
If you were to see me on the street you would probably never guess that I
have had multiple seizures and many twitches in my life.
I
know that we would all like to have epilepsy not be looked down upon
but let's face it, it's not the first thing you are going to tell
someone on a job interview. People are still scared because when
someone hears epilepsy they automatically think seizures. They don't
think about all the different types of seizures or different types of
epilepsy.
I chose to hide my epilepsy from most people.
If it's people I trust or people I am around a lot of course I will
tell them just in case if I was to go into a seizure. I tell them what
to do and give them my parents phone numbers. This sounds a little like
middle school for me where my parents had to know where I was at all
times. It kind of still is like that just I'm older and I don't fight
them about it or say they are over reacting. I know my limit and I know
how late I can stay up. I know I can't be reckless.
Even
though I chose to hide my epilepsy that doesn't mean I am ashamed of it
or don't want to talk about it. I just chose not to tell everyone. I
don't want to scare anyone especially if they first meet me because they
haven't known me for long enough to see that I'm actually pretty normal
I just have restrictions.
I know every one is
different and some people have no problem talking about it and some
people literally don't tell anyone but their family. Writing all of
this on the internet doesn't really hide it from people but at least I can tell my story one day at a time.
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