tag:blogger.com,1999:blog-72589197018798125182024-03-05T17:31:33.918-05:00Kicking Epilepsy's butt one day at a TimeAnonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.comBlogger47125tag:blogger.com,1999:blog-7258919701879812518.post-71735769106141512382013-07-16T13:54:00.001-04:002013-07-16T13:54:29.845-04:00Ganglion CystWell, on top of all of the problems I already have I know have an extra little one that isn't harmful; a ganglion cyst.<br />
<br />
It actually started to grow and I got a little worried. My physical therapy doctors say it's not harmful and they do massages with my wrist and fingers so I get some kind of movement. Ganglion cysts from my research I've done online can appear in a few different places and mine actually appears on my wrist.<br />
<br />
When I first saw it, it was while driving and I thought hey I have an extra bone. Then I got a little worried that it might be a tumor. Well turns out it's just a cyst.<br />
<br />
It has grown since so I did some research and asked my doctors they said if I want to start running tests I can and they can drain it or operate. I think I'm just going to wait a little and see if it goes away on it's own. I think it's kind of cool too, it's an extra little growth haha. I find medical stuff interesting. If the operate I wish I could be awake for it to see how they do it but I'd rather not feel the pain of doctors digging in my wrist.Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-80112754377732587042013-07-12T10:53:00.002-04:002013-07-12T10:53:31.215-04:00Hiatus<div class="MsoNormal">
Wow, I haven’t written in here in almost a month. I’ve been so busy and I’ve taken up a few
hobbies so life has been hectic. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I’m still in physical therapy which is a bummer, because I
don’t feel my body getting any better, it still feels the same way it did
before, I still have my good and bad days.
I’ll give it a few more months and see what happens. Also, no seizures or any mishaps with my epilepsy, except trying to get my medication and dealing with insurance companies as usual (and successfully getting what I wanted!).</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Life in the office has been crazy too. Lots of different things going on and I’ve
been so stressed that my sparkle has dulled.
However, I’m still trying to make sure I’m bubbly and trying to stay
positive.</div>
<div class="MsoNormal">
So the hobbies I’ve taken up are EXTREMELY girly haha. I started re-posting in my fashion
blogs. I went on a 2.5 year hiatus and
decided that I wanted to start posting again, just for fun, plus it’s a passion
of mine. I also started to get into nail
art. I’ve been reading so many tutorials
online and have been testing them out on myself. So far I would say I’ve been pretty
successful.</div>
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<br /></div>
<div class="MsoNormal">
Now lastly since I’ve been so keen on donating and
volunteering and helping out as much as I can I decided to volunteer for a
local animal rescue & shelter. After
trying to find homes for stray cats that are wandering around my house, and was
not successful I started to go to animal shelters. Well apparently stray cats are not the strays
we all think of. These cats are feral
cats, me not knowing ANYTHING about cats I didn’t know the difference. Even though they have become domesticated and
they even eat from my hand they are considered feral. Well NO shelters within a 100 mile radius (at
least that’s where I had to have the Humane Society step in) would take the cats,
even the two kittens would not be allowed in the shelter. </div>
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<br /></div>
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I started to get worried that I was going to have to bring
them to the town animal control/pound because we all know what happens when
they go there. I actually started to cry
and someone told me why don’t you call the Humane Society. So I did, and was not successful with the
organizations they gave me at first so I called a second time. The second time I was successful. They gave me the phone number of a shelter
that is actually 10 minutes away from my house that rescues feral animals as
well, not just “strays.” Well after all
of their help I decided even though I’m allergic to cats and not dogs I want to
help. I will help even the cats (just
take some Benadryl first) and volunteer. I submitted my application on Monday and am
currently waiting for a call back (they say it takes about a week to two weeks
for them to review it). So I’m crossing
my fingers because I want to do as much good as I can.</div>
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<br /></div>
<br />
<div class="MsoNormal">
Also I’m walking in a cancer walk in memory of my friend’s
mom who passed away from cancer in September.
So I would say I’m on the right track!</div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-43420396686243904252013-06-19T14:51:00.001-04:002013-06-19T14:51:35.968-04:00Stressed again.<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Well I haven’t really written in here in a few days.<span style="mso-spacerun: yes;"> </span>I feel like no one is reading this anyway.<span style="mso-spacerun: yes;"> </span>I did want to mention how super stressful I’ve been lately.<span style="mso-spacerun: yes;"> </span>I know I already talked about it last week but I found out some more bad news and I’ve been stressed ever since.<span style="mso-spacerun: yes;"> </span>I hate being stressed because I’m always worried I’m going to end up having a seizure or something.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">This week has been a little easier at work however it’s been a little difficult in my personal life. <span style="mso-spacerun: yes;"> </span>I wish I could be five again where there was not a care in the world.<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I might sound kind of depressing but truth is my previous doctor wanted to put me on anti depressants because he wanted to diagnose me with depression, but I didn’t want more medication so I refused to take it.<span style="mso-spacerun: yes;"> </span>I think I’m fine, I only ever get upset every once in a while.<span style="mso-spacerun: yes;"> </span>Kind of trying the whole mind over body but really mind over mind/brain.<span style="mso-spacerun: yes;"> </span>I’m not sure if that makes ANY sense haha.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Anyway, I hope everyone is having a great week. </span></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-14405327317654835462013-06-16T12:11:00.004-04:002013-06-16T12:11:34.250-04:00Happy Father's Day<br data-mce-bogus="1" />Happy Father's Day to the greatest dad a girl
could possibly have. Even though I am my dad's height in heels I was
always carry the title of "Daddy's Little Girl." He came to the United
States at 25 (same age I am now) to start a new and better life for him
and his wife and in the future for his children. My mom followed him
shortly after because it took her forever to get her Visa to leave
Poland so her and my dad actually had to get married 3 times in order to
prove that they are actually married. Well 30 years later they are
still happily married and have two kids, myself and my brother.<br />
When
my dad came here he didn't know English so he started to teach
himself. He read many books and even though he could only speak a few
sentences he tried looking for jobs, even if they were dead end ones
just to be able to put food on the table. Well my dad's first job here
in the states was working at a gas station for very little money, but he
did it. <br />
<br data-mce-bogus="1" />
After that my dad knew enough
English to get a college degree since the one he had from Poland didn't
count for anything. He managed to get his degree and landed a really
good job working in his field; computer graphics. He slowly worked his
way to the top and now all those Lancome advertisements you see, yup my
dad has worked on those :)<br />
<br data-mce-bogus="1" />
I'm very proud
to call him my daddy aka Tatusiu, he has worked so hard for so many
years and I hope one day I can give back to him as much as he gave to
me. When my grandfather passed away (his dad), he made a few major
promises to me and my dad fulfilled them for him in his absence. I will
never forget all of the sacrifices both him and my mom made for me and
well I guess my brother too hehe.<br />
<br data-mce-bogus="1" />
I hope you have a good Father's Day daddy, Wszystkiego Najlepszego z okazji Dzien Taty!!<br />
<br data-mce-bogus="1" />
Love always,<br />
MisiaAnonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-43171777886819815112013-06-14T21:13:00.000-04:002013-06-14T21:13:46.924-04:00Stress Free? Maybe one day.<div class="MsoNormal">
As some of you know my epilepsy is caused by a few
different things but one being stress. Good news is I didn’t have any
problems, not even twitches this week and I think it’s been the most
stressful week since I was getting all of my EEG tests back in
January/February. However I’m glad I handled everything the way I did.
Don’t get me wrong I’m exhausted but at least like I just won a small
battle.</div>
<div class="MsoNormal">
<br /></div>
The whole time all of this
was happening I kept thinking in my head “don’t worry, be happy.” I
love that song, the Bob Marley version is my favorite I think.
Apparently that was the first song I ever danced to (on all fours in a
diaper with my butt kind of shaking) when I was younger. So I guess
I’ll leave everyone with Don’t worry Be happy!Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-44388077720196698262013-06-10T20:37:00.001-04:002013-06-10T20:37:38.190-04:00Rest Easy<div class="MsoNormal">
I just realized I haven’t written in here for about
a week. I’ve been so busy and exhausted. The weekend was also pretty
busy. I was my mom’s chauffeur haha. I really had no choice because
over the weekend my dad noticed a bubble in my tire, meaning I had no
car to drive. However, I do get a really nice courtesy car until my car
is fixed!</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
So I got my MRI results
back for my knee. I don’t know if I wrote about how I was getting an
MRI. Well, no surgery is required (yippeeeee) but I do have to go to
physical therapy. I have some muscular syndrome (it starts with a c and
it’s really long) that is causing my muscles to play tug of war and in
doing this they are playing tug of war with my knee cap so it lifts from
side to side. Then there’s some damaged cartilage that can be
strengthened. Apparently it is very common in athletes (which I was
super athletic growing up) because they don’t stretch correctly or when
they train/work out they don’t work all the muscles they are supposed
to. So one side of my knee is tough and the other side is so weak that
my knee cap has actually shifted to that side. Apparently the same
thing is happening with the other knee too but there’s no damaged
cartilage making it super painful.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Oh
and I have a gaglian cyst on my wrist. I’m just falling apart. The
doctor said it seems benign for now but to keep an eye on it because if
it starts to hurt or impair the usage of my wrist then I need to get it
drained/removed. It hurts a little but not enough to impair any type of
movement.</div>
<div class="MsoNormal">
<br /></div>
Either way for now I’m somewhat healthy and that’s all that matters really. Happy <span class="aBn" data-term="goog_438219844" tabindex="0"><span class="aQJ">Monday</span></span> everyone!Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-24544569812500025452013-06-05T20:24:00.001-04:002013-06-05T20:24:34.461-04:00Sunshine<div class="MsoNormal">
Last week I was called a bottle of sunshine by one
of my co-workers and one of my managers. I feel as though at my job I
am finally appreciated and recognized for the work and positive attitude
I put in. In past jobs, I was never recognized for anything that I did
that I finally just didn’t care anymore and stopped going above and
beyond unless if it would help a customer. This brought me down not
only at work, but also in life in general. I started to think, am I
really that bad of a person? Do I really not do enough? So I started
being somewhat mopey for a while. Kind of like eeyore! </div>
<div class="MsoNormal">
I
think the negative energy traveled from work into my personal life and
that was not healthy whatsoever. That’s why with my job now I have
decided anything bad that happens will not come home with me and the
next day I will start all over again.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Anyway,
I was called a bottle of sunshine not only by people in my department,
but one of the other departments as well, all because I say Good
Morning. I’m trying to have a new take on life in general. When it
comes to work, I will work as hard as I possibly can. After work is
when I have my life. I will not let anything negative spill over to my
personal life, as well as no personal things coming to the workplace. I
think that’s why I’m so positive because I block out certain things and
I let a lot of things go. Which can also be bad because I can easily
get taken advantage of. However, I feel that I’d rather be this way
than what I was before. It’s really not that hard to be happy, at least
for me. I have a loving and supportive family, a dog who loves me
unconditionally, a job, and just enough friends.</div>
<div class="MsoNormal">
<br /></div>
I
know there are people out there who have it much worse than I do,
therefore I have no reason to be negative. Sure I could be negative
living with epilepsy and having to be technically somewhat disabled for
the rest of my life, but I’m very positive. Maybe it’s just my
personality but being a bottle of sunshine makes for such a better life!Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-84220264795469008672013-05-29T21:25:00.001-04:002013-05-29T21:25:18.798-04:00Sad news...<div class="MsoNormal">
So today I found out some upsetting news. Someone
that I work with is leaving. After I found out this news, obviously I
was upset. I then started thinking about how you meet people and they
come in and out of your life for a reason. People are in your life to
teach you lessons and you are there for the same reason.</div>
<div class="MsoNormal">
What
lesson did I learn from this person? Hmm, that’s a good question
because there are so many different things. First and foremost to be
more genuine and more relaxed with certain parts of my life. They also
showed me that there is more than meets the eye. When I actually talked
to my coworker and found out what had happened we got to talking not
only about work but life in general. It’s nice to find out how someone
really is outside of work. You work with people every day but don’t
actually know them until you sit down and talk. Everyone is fighting a
battle that you know nothing about and I think sometimes we forget this.</div>
<div class="MsoNormal">
I
think that people get so wrapped up in their lives, problems, issues,
situations, etc that they don’t stop to think that the person you see
more than your own family and probably even spend more time with may not
be the same person outside of work. This person is great all around
and I will truly miss them. Once we got to talking I saw that we almost
have the same plans for our futures and hope to succeed. Even though
now certain future plans seem unreasonable and unattainable I know if I
put my mind to it I will be able to do it.</div>
<div class="MsoNormal">
I
hope I keep in touch with this coworker and they will be greatly
missed, and I’ll probably cry when they actually leave. I’m just an
emotional person though. </div>
Sometimes
in life we tend to forget about certain things, whether its emotions,
or just simply thinking about other people. I feel as though people get
some wrapped up in themselves (not necessarily selfish) that they don’t
stop to reach out to others. I’m guilty of getting wrapped up with my
life and my epilepsy and making sure that I am healthy. I’m not going
to lie sometimes I think I have it worse than others when I really
don’t. Sometimes I do envy the people who don’t have to live with this
condition. So maybe ask how someone’s day is going so far or how it
was. You might be able to create a new relationship with a few simple
words.Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-84809275650230024252013-05-28T20:46:00.002-04:002013-05-28T20:46:24.644-04:00Any thoughts?<div class="MsoNormal">
So I haven’t written in here in a few days. I’ve
been busy and also I wasn’t sure if anyone was even still reading this.
I wanted to take the time and talk about passion or hobbies. What does
everyone do that keeps them happy? I have a few different things that I
do for fun just because if I didn’t I wouldn’t have those little things
that keep me going. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
The little
things that focus my attention on other things is what gets me through
the day. I think if my brain and I were alone we would have some
serious issues haha. Anyways, I like to obviously upload in this blog
but I have a few other blogs, mostly fashion that I like to post in
too. It makes me happy and it’s something I’m passionate about. I know
to some people it’s just clothes and why would you spend money on five
million pairs of shoes, but to others (like myself) think of it as an
art. The quality of the way things are stitched or made, or quality of
the textiles themselves, just makes me interested in clothing. </div>
<div class="MsoNormal">
<br /></div>
I know that’s a pretty general hobby but what do all of my readers do for fun? What are you passionate about?Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-15471055980602960772013-05-23T20:33:00.000-04:002013-05-23T20:33:02.207-04:00Physical Therapy Part II<div class="MsoNormal">
Yesterday at PT you have to fill out a bunch of
forms just like any doctors/hospitals visit. I didn’t realize how
intense Epilepsy is looked upon until yesterday. When I was filling out
all the forms it asks you to check off health conditions, epilepsy
being one of them. When I was put in the room with the doctor’s then
placed with a therapist as soon as they read about the epilepsy their
faces were surprised and alarmed. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
The
question they asked is, is it well controlled? I guess they have to
ask because you’re around a lot of equipment and what not so just in
case. I always wonder what they mean by well controlled, and what would
happen if I were to say no it’s not? I guess these should be questions
I ask the doctor but it just makes me wonder.</div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvUZWwAPG_ED1eHqbrHltK-LxafRgFjyqFis5IAZBtkIoKo_aK7Kb9Ea3ORaq_f0vg8W63Zq3J2KGVdDtjbqKj-YdtOmrLJHWSDwtAbR_bH-QKOGj4vwRsU-5J26ph9CTSayNUtY2ZdFI/s1600/photo.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvUZWwAPG_ED1eHqbrHltK-LxafRgFjyqFis5IAZBtkIoKo_aK7Kb9Ea3ORaq_f0vg8W63Zq3J2KGVdDtjbqKj-YdtOmrLJHWSDwtAbR_bH-QKOGj4vwRsU-5J26ph9CTSayNUtY2ZdFI/s1600/photo.JPG" height="320" width="240" /></a></div>
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Well
there is a lovely picture of this new trend I’m setting haha, I’m just
kidding. That’s the tape I have to keep on until I go back to physical
therapy again. It’s somehow supposed to support my knee and what not,
we will see how it goes. For now, I’m in pain and sore and hoping that
it is a good sore not a bad one.Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-83742095843438957272013-05-22T13:55:00.001-04:002013-05-22T13:55:49.706-04:00Continuing my education.<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">So as you all know I was diagnosed senior year of high school and almost didn’t start my freshman year of College.<span style="mso-spacerun: yes;"> </span>Well I’ve worked all the way through and getting my MBA in January of 2012.<span style="mso-spacerun: yes;"> </span>I have decided that going back to school for my PhD is now feasible.<span style="mso-spacerun: yes;"> </span>I think this is the perfect time to at least start researching.<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">After seeing all of these people posting about how they graduated it made me want to go back to school even more.<span style="mso-spacerun: yes;"> </span>Just to be able to graduate AGAIN haha, no I’m just kidding although that’s a perk.<span style="mso-spacerun: yes;"> </span>I have the discipline for school and I enjoy learning and I actually like the classroom setup.<span style="mso-spacerun: yes;"> </span>Funny thing is, I used to hate school but now I don’t mind it.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">One thing I don’t like are exams because that involves lots of studying but it’s ok, I think once I get more used to work and have a set schedule with everything else in my life I’ll be able to finally start school again.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Wish me luck on my research!</span></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-26658819864308617122013-05-21T12:00:00.001-04:002013-05-21T12:00:28.250-04:00Medication in your system and I need help answering a question!<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Well, today I woke up with a massive stomach ache and was not able to move. I was a little worried because I felt like I was going to throw up and I can’t throw up my medication. I had that sweaty hot then chills feeling you get when you’re about to get sick. Somehow I calmed myself down enough to be able to focus and get ready for work. </span></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<br /></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Needless to say I was on the safe side. The doctors tell me I need at least 2 hours after swallowing my medication for it to dissolve and spread out into wherever it needs to go, I threw up as soon as I got to work after my 1.5 hour drive (traffic). So at least I was on the safe side with that. I always get so stressed when it comes to that because I can’t take it a second time so I have to be cautious on what I do in case my body goes into a seizure because there’s no medication. </span></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<br /></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">I also wanted to ask a question. Does anyone know if there are any Epilepsy Walks in NYC? I see it for Washington DC but I’m kind of far from there and I really want to walk and would rather do it in NYC but if need be I’ll go to Washington DC. If anyone has any information please let me know! Thanks!</span></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-72304736335118074832013-05-20T20:37:00.003-04:002013-05-20T20:37:34.229-04:00Physical Therapy<div class="MsoNormal">
So today was the day I went for a consultation for
Physical Therapy. I needed to go for two reasons, one being my knee,
and the other being my back. I actually just finished paying off the
medical bill for my knee, but that’s another story in itself.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
To
start off my knee was injured back in 2011. I believe it’s due to the
fact that I was born pigeon toed and I always had bad knees. Well
unfortunately I was at job #1 and I was working in retail, I picked up a
box of shipment and when I turned I immediately felt a sharp pain and
dropped the box. It hurt and I started to limp but I thought its ok I
probably just popped it out again. I went to job #2 that night and
after about 2 hours of standing I had to sit down. My knee had felt as
if it had exploded or something. When I sat down I put my knee up and
one of my co-workers immediately brought me a bag of ice, I had no idea
why until I looked at my knee. It was swollen up to double its size.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
That
is when I started to worry. I obviously went home after I saw that and
the problem was it was my left knee and I drove a manual at the time so
I needed my left foot for the clutch. Thankfully I didn’t have that
far of a drive but it did make it worse.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
The
next morning I woke up and called the doctor immediately. When I saw
her, she told me that it looks like I tore my meniscus, not severely but
enough to cause the rest of the cartilage in my knee to inflame. She
sent me for an x-ray because insurance companies need to see an x-ray
first that I ended up paying the full amount for and never even got the
results because they got “lost.” Well sine I already hate dealing with
doctors and offices I decided the anti-inflammatory medication would be
fine and I would just deal with the pain. Well it’s 2013 and I’m still
in pain. My knee gives out all the time, it gets swollen, and hurts a
lot. </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Well not only did this
happen but a year ago as soon as I got my new car I got into a car
accident. The police officer said it was technically my fault even
though you could clearly tell I swerved to avoid the woman. I live
around very windy roads that have blind spots everywhere. I was coming
around a turn and boom there was a lady stopped right in the road for no
reason, I swerved to avoid her but just clipped her passenger rear
while completely totaling the whole driver’s side of my car. The door
wouldn’t open, the hood was destroyed and everything was damaged.
Needless to say thanks to this my seatbelt never locked and the steering
wheel ended up catching me. When this happened I jerked my back and
got whiplash. The doctor said I was going to definitely need physical
therapy for my back.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Easy for
doctors to say I need physical therapy. I haven’t gotten it because of
my terrible insurance. I was actually terrified that they wouldn’t even
cover my visit to my neurologist and the EEG back during the winter.
Now that I have good insurance I’ve decided to at least try physical
therapy. We will see how it goes and hopefully I’ll be able to live a
little more comfortably soon.</div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-17633106891095756402013-05-19T20:02:00.003-04:002013-05-19T20:02:43.350-04:00Cystic FibrosisI know a few posts ago I uploaded a link for my one friend who has cystic fibrosis. I actually know him through my other friend who I've known for the past 10 years and she also has cystic fibrosis. I saw her yesterday to catch up and I asked her about her CF and how she's been health wise. The doctors gave her a life expectancy of 35 which is the average. Her boyfriend who also met up with us didn't like this conversation for obvious reasons but it's actually thanks to him that for the past few years her lung capacity has been over 50% unlike a few years ago when she was in the hospital with a capacity of 35%. Also, just to put this in perspective, the capacity of a healthy human being is 130%.<br />
<br />
I just wanted to share about her because I think about what she has to go through and how she only has about 12 years left (which maybe by then medication will be able to help her more) and how amazing her attitude is. She has such a positive attitude and acts as if she doesn't eve have CF. Her boyfriend helps her she tried to go to college but couldn't finish because she got so sick that she was in the hospital for a while. She can only work part time because she can't over exhaust herself. Her boyfriend has to give her therapy and hit her back in a few different spots to help her break up the mucus so she can cough it up along with making her take all of her treatments and medications. <br />
<br />
She is such an inspiration to me and I can't believe that the 12 year old girl I met so many years ago has turned into such a fine woman even with cystic fibrosis. She is such an amazing person and I wish everyone could meet her. I hope everyone can take something out of this.Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-81578730838992628222013-05-17T12:09:00.002-04:002013-05-17T12:09:58.846-04:00People can be so cruel.<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I know that yesterday I mentioned that I have other blogs that I post in.<span style="mso-spacerun: yes;"> </span>Well this is also something that I will post in my fashion blogs but I feel that this is relevant to other people not just fashion addicts.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I’ve also talked about how I was made fun of growing up, but for some reason I feel like nowadays it’s even worse.<span style="mso-spacerun: yes;"> </span>You hear about all of these different stories in the news about kids killing themselves because they couldn’t take it anymore.<span style="mso-spacerun: yes;"> </span>A lot of people are saying that the internet has something to do with it and I am going to say I have to agree.<span style="mso-spacerun: yes;"> </span>Put a computer in front of someone and they automatically feel like a tough guy on the internet.<span style="mso-spacerun: yes;"> </span>I’ve seen lots of cruel posts on social networks and it makes me wonder what is going to happen to the generations to come or even my own?</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">The reason why I am writing about this is because what someone had told me yesterday.<span style="mso-spacerun: yes;"> </span>She is my mentor and friend.<span style="mso-spacerun: yes;"> </span>She is Asian and told me how growing up she was made fun of for being Asian.<span style="mso-spacerun: yes;"> </span>First of all I think Asian women are drop dead gorgeous, they are so elegant and have you seen how great they age???<span style="mso-spacerun: yes;"> </span>Secondly even though I am Caucasian and I easily blend in with the majority of people I was made fun of as well for being Polish.<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">My friend had told me about something she saw on a blog the other day.<span style="mso-spacerun: yes;"> </span>She follows a makeup blog specifically for Asians because they do their makeup differently than I would and they are limited with what they can do.<span style="mso-spacerun: yes;"> </span>She said the author had posted a video from YouTube that has been officially banned about a Caucasian girl talking about how “ugly” Asian girls are and how she doesn’t see any beauty in them and how she just hates them.<span style="mso-spacerun: yes;"> </span>Um, what????!!!!</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">When she told me about this I was outraged.<span style="mso-spacerun: yes;"> </span>How can someone say something like that???<span style="mso-spacerun: yes;"> </span>What makes it worse is that it was a Caucasian girl so I am ashamed that she has made the rest of us who don’t agree with her look like monsters.<span style="mso-spacerun: yes;"> </span>If anyone is ugly it would be her personality and if you don’t have a good personality or heart then even if you might be the prettiest girl appearance wise your heart just made you the ugliest woman alive.<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I am sorry if I sound harsh or if I offend anyone, but the honest truth is everyone is beautiful no matter what color, size, or shape you are.<span style="mso-spacerun: yes;"> </span>Thank you for hearing me out on this, I’m sure more people are outraged by this as well.<span style="mso-spacerun: yes;"> </span>Sometimes I wonder if I’m meant to live on a different planet or something.</span></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-28735349117493411012013-05-16T16:42:00.002-04:002013-05-16T16:42:37.810-04:00It's the little things.<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Well today I woke up to a lovely surprise, that caused a good chain reaction. I am currently in other blogs for fashion, because that’s my absolute favorite. Well, the one website that I post on, I was featured in their main page for style. This was such an exciting moment for me. On top of that I had a great morning, and I decided today was a good day to dress up even more. I still have to tone it down because I work in an office so Business Casual is a must but it was still fun.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<br /></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Once I got to work, everything just went well and maybe it was coincidence or maybe it was the positive chain reaction from this morning. This is a short post but I just wanted to share with everyone that sometimes it’s the little things in life that can make all the difference. So maybe that person in your life who you know is having a bad day do something to brighten up, it might help change their whole day around.</span></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-38672758364755120692013-05-15T19:29:00.004-04:002013-05-15T19:29:45.595-04:00New Zealand<div class="MsoNormal">
I was doing a little bit of browsing on the
internet today and came across something interesting. Three American
celebrities were part of an Epilepsy Awareness campaign in New Zealand.
I think this is amazing! Regardless of it it’s here in the states or
overseas somewhere it’s still raising awareness for the same cause that
affects all of us in different countries. <span lang="EN">Hugh Laurie (Dr. House), Jack Black and Harrison Ford were the three who participated. </span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span lang="EN">Epilepsy
New Zealand has asked for everyone to just talk about Epilepsy and
Epilepsy Awareness annually in November. This is extremely important
because it’s showing people who don’t have it what we have to go
through. I feel like a lot of people judge me when I say I have
epilepsy. The first question I always get is “you’re not going to have a
seizure now right?” I know that for an “outsider” this would be a
common thing to ask because so many people are afraid or think we are a
danger to not only ourselves but society as well. I can see where
people raise this concern but at the same time a pedestrian can be
crossing the street and get run over and they can be the healthiest
person. </span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span lang="EN">Technically we are categorized as disabled human beings but I
don’t feel as though I am. Someone once asked me a long time ago “why
don’t you collect disability?” Since I don’t feel disabled, I don’t
think that way, plus that would go completely against my morals because I
would be taking away money from people who really are disabled, some
people are disabled from epilepsy or who aren’t as lucky as I am to live
a somewhat normal life, how can someone even think that since it’s free
money I should just take it? It may be “free money” but other people
need it more than I do. Sure there are bills I can’t pay due to my
epilepsy or that I have to pay so much for my medication because I CAN’T
take generic but I can’t complain.</span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span lang="EN">I
can still drive, work, go out, go shopping, eat what I want, and just
function in general. I am one of the lucky ones to have epilepsy and
not have it be as bad as some of the cases I read about. Don’t get me
wrong getting to this mentality was definitely NOT easy, a lot of blood
sweat and tears went into accepting that this happened to me. As I have
posted in the past, it could be worse and if for some reason my
condition gets worse ok I’ll tackle that problem when it comes but for
now I can still function, so I don’t have it that bad.</span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span lang="EN">The
only thing I worry about is being judging me or bullying me for it.
I’m already an adult but sometimes I worry. What if my work finds out?
Will they try to find a way to fire me so I don’t become a danger to
the office? Or will they fire me so I don’t use lots of money for
health insurance? What about people my age, will they look at me
differently? Will they stop being my friend if they find out something
is wrong with me? Should I tell certain people I am with frequently so
they know what to do if I have an episode?</span></div>
<div class="MsoNormal">
<br /></div>
<span lang="EN">Those
are the questions that are constantly going through my head and I am
still battling with the correct answers, but for now I’m just going with
the flow.</span>Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-66281726469725591522013-05-14T14:59:00.002-04:002013-05-14T14:59:38.675-04:00Read about Cole and his story.<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">So lately I’ve been feeling a little discouraged, until today.<span style="mso-spacerun: yes;"> </span>I haven’t really gotten much traffic through my blog and I just want to be able to reach out to some people.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Today I decided why don’t I look at some other epilepsy blogs and see what other people are writing about because I feel as though I’ve run out of things to talk about, everyone knows who I am, they know about my diagnosis and what has happened since, but what else do they really need to know?</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I browsed some blogs today.<span style="mso-spacerun: yes;"> </span>I came across one blog that truly brought tears to my eyes.<span style="mso-spacerun: yes;"> </span></span><a href="http://beatingepilepsy.blogspot.com/"><span style="font-family: Calibri;">http://beatingepilepsy.blogspot.com/</span></a><span style="font-family: Calibri;"> I am telling everyone to go read about Cole who has been struggling with seizures since he was a baby and is now going to be a big brother.<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">As I was reading Cole’s blog today (his mom writes for him obviously because he’s not old enough) I started thinking “This is exactly what I had mentioned some posts long ago.”<span style="mso-spacerun: yes;"> </span>This little boy has been struggling since he was only 10 months old, I’ve only been going through this since I was 17.<span style="mso-spacerun: yes;"> </span>Just like I said once before that I don’t have it that bad because at least I got to live an epilepsy free life and remember it.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I can’t even imagine what Cole’s parents have had to go through and how much stress his mom is under especially now that they have another baby on the way.<span style="mso-spacerun: yes;"> </span>I know if I were her I would be terrified.<span style="mso-spacerun: yes;"> </span>I read that the doctor told her she had to take lots of folic acid just to be cautious.<span style="mso-spacerun: yes;"> </span>I already know that if I ever decide or can have children with my condition I will have to take much more folic acid than what I am already taking.<span style="mso-spacerun: yes;"> </span>Even though I don’t have a significant other (yet) I still worry about my future.<span style="mso-spacerun: yes;"> </span>Will I be able to have kids?<span style="mso-spacerun: yes;"> </span>One doctor already told me I can’t but my other doctor said I can but I would have to be monitored and wouldn’t be able to experience a normal pregnancy.<span style="mso-spacerun: yes;"> </span>I’m afraid because what happens if I have a seizure while being pregnant, what can happen to the child?<span style="mso-spacerun: yes;"> </span>Or what if my baby ends up having epilepsy too?</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">All of these questions scare me into NOT wanting to ever have children and just adopting when the time is right.<span style="mso-spacerun: yes;"> </span>I know I shouldn’t be looking so far ahead but sometimes I do think about it because well I am 25, a few more years and I will want to settle down.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Maybe by the time I want to have my own family there will be something out there that will ease my “what if’s.”</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I strongly urge everyone to go read about Cole, it will change your life.</span></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-67912309692728355622013-05-13T12:03:00.001-04:002013-05-13T12:03:51.978-04:00Helping to control my Condition.<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I’m not sure how everyone else’s epilepsy is, triggers and such.<span style="mso-spacerun: yes;"> </span>Mine is caused by sleep deprivation and stress.<span style="mso-spacerun: yes;"> </span>My job is fairly stressful, making sure deadlines are met, and our clients are satisfied, while dealing with any internal changes.<span style="mso-spacerun: yes;"> </span>The business world is just like the fashion industry; constantly changing.<span style="mso-spacerun: yes;"> </span>Sometimes stress at work can affect stress at home, or in personal life.</span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjociuFRW61XYnjm1iZBqD_s5WEu4LyI3vy-d0qFia30syFu90KfGL7BZ3x9aFPnfmFH1e_eG1R54F95vRev8V4s4y4GTUkf91frF4mpyiZzWyqrr4cpSZ3eUuHxIA5O4MQ76ypAGFQT8I/s1600/no-stress.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" pua="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjociuFRW61XYnjm1iZBqD_s5WEu4LyI3vy-d0qFia30syFu90KfGL7BZ3x9aFPnfmFH1e_eG1R54F95vRev8V4s4y4GTUkf91frF4mpyiZzWyqrr4cpSZ3eUuHxIA5O4MQ76ypAGFQT8I/s320/no-stress.jpg" width="318" /></a></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">A few key things that I do in order to keep my stress levels down are pretty simple.<span style="mso-spacerun: yes;"> </span>First of all, when it is lunch time, I leave the building even if it is just to go outside and get some fresh air.<span style="mso-spacerun: yes;"> </span>I used to work straight through my lunch but a human being needs a break regardless of if you have a condition or not.<span style="mso-spacerun: yes;"> </span>Once I leave the building I try not to think about what’s going on back at the office, whether it’s phone calls or emails that I’m getting.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Secondly, and I feel as though this is the most important way to stay clear of being stressful (besides sleeping well), leave work problems at work, DO NOT bring them home.<span style="mso-spacerun: yes;"> </span>Sure it’s ok if you tell someone what happened at work, whether it was good or bad, but most of the time if anything bad happened I’ll leave it at work, unless if it is bothering me extremely bad.<span style="mso-spacerun: yes;"> </span>DO NOT DWELL on something that you can’t fix or something that you can’t do anything about until you are back at work.<span style="mso-spacerun: yes;"> </span>It’s kind of like when you go to work you leave your problems at home.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Thirdly, I have hobbies.<span style="mso-spacerun: yes;"> </span>Yes, I am a stereotypical girl who loves to shop and has a shoe closet that is overflowing, but I also like to do other things.<span style="mso-spacerun: yes;"> </span>I have a dog who is like my child, I sew, and I try to hang out with my family, oh and let’s not forget this blog.<span style="mso-spacerun: yes;"> </span>I like to have certain hobbies not just to live a less stressful life at work but in general to live a well balanced life (probably why I was born a Libra).<span style="mso-spacerun: yes;"> </span>When you have something therapeutic in your life it helps you stay well rounded.<span style="mso-spacerun: yes;"> </span>I would like to get into more things that have to do with nature or volunteering but that will come with time.<span style="mso-spacerun: yes;"> </span>I am just now starting to get my life completely together and I want to start saving for my very own house.<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Fourthly, set goals for yourself.<span style="mso-spacerun: yes;"> </span>Ok, I understand sometimes this can be stressful for people, trust me sometimes it is for me.<span style="mso-spacerun: yes;"> </span>Although, it is a good stress, or at least I think so because if something is worth it in the end after working hard that little bit of satisfaction is all you need.<span style="mso-spacerun: yes;"> </span>You are working towards something that you want to accomplish.<span style="mso-spacerun: yes;"> </span>Of course make your goals obtainable not impossible!<span style="mso-spacerun: yes;"> </span>That’s why I made a bucket list of things I want to do.<span style="mso-spacerun: yes;"> </span>I’ve already crossed off two things out of about 30!<span style="mso-spacerun: yes;"> </span>So that’s an amazing start!<span style="mso-spacerun: yes;"> </span></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgazHvazu0uGMpeO0Jsdr6EFpKXZ8IC2x9GWSEbj5hI6SJcI3VjrcTxWZ4Hat15XZDPhqU9gTzU5XP-Gc06Fre8XXE1nCL0defXdQCAZurB31jI5fymnvK5nL0qAa4i98MqEDSgyyl_sfU/s1600/bucketlist1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="228" pua="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgazHvazu0uGMpeO0Jsdr6EFpKXZ8IC2x9GWSEbj5hI6SJcI3VjrcTxWZ4Hat15XZDPhqU9gTzU5XP-Gc06Fre8XXE1nCL0defXdQCAZurB31jI5fymnvK5nL0qAa4i98MqEDSgyyl_sfU/s320/bucketlist1.jpg" width="320" /></a></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<br /></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Number five on this list is spending time with family.<span style="mso-spacerun: yes;"> </span>There is nothing more important than family.<span style="mso-spacerun: yes;"> </span>I’ve had some struggles in the past few years and my family was the only thing that kept me going.<span style="mso-spacerun: yes;"> </span>All of my “friends” (or so I thought) left me and my family helped pick up the pieces.<span style="mso-spacerun: yes;"> </span>I can never repay them enough.<span style="mso-spacerun: yes;"> </span>I can tell them anything without feeling judged and knowing I will get the honest truth, not a sugarcoated one.<span style="mso-spacerun: yes;"> </span>I know they will love me no matter how difficult I may be so I like to spend time with them.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">Lastly on my list, I know my life isn’t that bad.<span style="mso-spacerun: yes;"> </span>There are people out there in the world who have it way worse, so I really have no reason to complain or be worried about life.<span style="mso-spacerun: yes;"> </span>I am blessed with everything that has gone positively in my life in the past half year.<span style="mso-spacerun: yes;"> </span>I still think I’m living in a dream, but for now if it really is, I will soak up every second of it.</span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj90TrBIAKcbxy5jnx8r8T3Dt-qn6VAU_WlR6qNNjJwcimAsv3a8L36PJcJ4_Tt2z0-cZgbSjOMzYvJ1PGn73yYw1C2tbbvgLRIT0M8duYjGKTLxfki2dOByPHne7cQKEm8cwrBafzm3Qc/s1600/disney-funny-hakuna-matata-infinity-Favim_com-533684.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="160" pua="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj90TrBIAKcbxy5jnx8r8T3Dt-qn6VAU_WlR6qNNjJwcimAsv3a8L36PJcJ4_Tt2z0-cZgbSjOMzYvJ1PGn73yYw1C2tbbvgLRIT0M8duYjGKTLxfki2dOByPHne7cQKEm8cwrBafzm3Qc/s320/disney-funny-hakuna-matata-infinity-Favim_com-533684.jpg" width="320" /></a></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-85143177172069303422013-05-12T14:16:00.002-04:002013-05-12T14:16:43.028-04:00Happy Mother's Day!To all the mommies out there whether they are living or an angel today's your day! Happy Mother's Day, I don't know where I would be without my mom today, she is my rock, my heart, and my role model. I will never forget everything that she has done for me. <br />
<br />
Happy Mother's Day!Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-13645219737102342762013-05-10T19:44:00.000-04:002013-05-10T19:44:58.803-04:00Please help my friend get a lung transplant!https://www.facebook.com/mabreathe<br />
<br />
That is the link to my friends facebook fundraising page for Michael Accetta.<br />
<br />
I'm going to copy and paste the about section from that page as it's easier for someone who sees him everyday to be able to explain his situation better:<br />
<br />
"Michael Accetta 21 years old. Diagnosed at birth with Cystic Fibrosis.
Cystic Fibrosis is an inherited disease That effects the lungs and
digestive systems.<br /> <br /> Since birth, Michael has faced extreme
challenges and adversities fighting his personal battle against Cystic
Fibrosis. His fight has become more intrusive to his daily living and
activities. Michael takes in excess of 60 pills daily alon<span class="text_exposed_show">g
with various inhaled medications and his lung clearance treatments 3x
daily. IV antibiotic therapy has become more frequent and the duration
of this treatment lasts for weeks with round the clock infusions.
Hospitalizations and outpatient visits to the hospital are constant. On a
normal month Michaels medicines are in excess of 22,000.00<br /> This has never stopped him to push himself to enjoy life and accomplish his life goals. He never wants to stop!!<br /> <br />
Michaels lung function is quickly declining and putting him in
transplant status....thus the need to raise funds, No one knows the
exact timing of this, but they have advised the family to start the
fundraising process."</span><br />
<br />
<span class="text_exposed_show">Please if you can help I'm pretty sure he and every one who surrounds him would greatly appreciate it!!!!!! </span>Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-49289209434919322132013-05-08T19:35:00.007-04:002013-05-08T19:35:50.704-04:00What I come from<div class="MsoNormal">
I wanted to take this time to tell everyone a
little bit about myself. I’ve told people stories about my epilepsy,
what type I have, how normal my life has been but no one really knows
much about me or my background. I think it’s important to know just so
everyone can understand why I can deal with my epilepsy.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
First
of all my parents are immigrants, both come from Poland and came here
when they were in their late 20’s. They came from a country which at
the time was under communistic rule from Russia and they really didn’t
have a good life, nor did their futures seem any better. They left
Poland determined to make a life for themselves and future family. Even
though I wasn’t even a twinkle in the eye yet, they knew they would
someday have a family.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Well they
finally had their dream, a house, jobs (even though they were very
hard), and a baby on the way which was myself. My mom worked in a
factory and literally worked there until her doctor forced her to go on
maternity leave and my dad worked more than one job just to put food on
the table. He was also going to a county college because the education
he had received in Poland was not worth anything here in America. He
worked at one full time job, a part time job pumping gas, and went to
school on the nights he had off.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
When
my mom finally went into labor with me there were complications. Not
only was I premature (only by one month), but I was coming out feet
first and the umbilical cord was wrapped around my neck causing me to
almost choke myself. Needless to say I was born and they found that
even though they wanted to monitor me because I was premature most of my
organs were in normal condition and I had an innocent heart murmur.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I
had lots of health problems as a child, nothing too serious but I was
severely anemic, I had severe eczema (try telling a little kid they
can’t take bubble baths anymore), I was constantly getting sick and
after my brother was born (who was colicky) I was rushed to the ER. At
the age of 6 I was rushed to the hospital because I was turning blue. I
was having an asthma attack and later found out I had pneumonia. I was
stuck in that lovely hospital bed during Christmas time for almost 2
weeks. </div>
<div class="MsoNormal">
After I was released from
the hospital they put me on heavy medication, lots of nebulizer
treatments I had to do 3 times a day, and that was time consuming. Well
from all of the medication the steroids and the antibiotics I had such
bad night terrors that I started waking up in the middle of the night
and I started hallucinating. We went back to the doctor and they had to
figure out what to do to get me better but not at the cost of me
hallucinating. Eventually it was resolved and life went back to
normal. Well I grew up and had to watch myself because of my asthma,
eczema which eventually faded into only a few patches here and there and
everything was normal.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I went
through a lot of hospital visits growing up and doctors visits, but it
wasn’t too bad after everything settled down. Once I started growing up
and going to school I was bullied. My classmates were very cruel
towards me, making fun of me every day from the day I moved to where I
live now. I was made fun of for being Polish, having a gap in between
my two front teeth which now I laugh about because I probably did look
pretty funny, but there were so many other things. Just the little
things that kids make fun of you for, your hair, your clothes, etc. I
most of the time just kept my mouth shut and took it all in. Don’t get
me wrong I cried like a little baby but I did it when no one was
looking. I didn’t want my parents being worried and they only knew
about a few things that were said to me but not everything, I actually
told them everything that was said and done to me in the past year. The
topic about bullying has become a trending topic so I finally opened up
and told my parents what I had to go through. They knew I was never
part of the popular crowd and that I didn’t ever fit in completely but
they didn’t know it was that bad.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I
think I never fit in because my parents are Polish and I come from a
Polish upbringing and culture so I was always different from all the
other kids.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Once high school came
it was not as bad as it used to be. The teasing and bullying calmed
down, but I started to become really self conscious and fell into an
eating disorder. I was almost 50 pounds less than what I am right now
and I’m 5’9 so for me to be the size I was, was really bad. I look back
on it now and I was literally just skin and bones, at least now I have a
figure. Anyway I had the eating disorder until mid junior year.
That’s when I started kickboxing and soccer. All the years before I was
a ballerina but stopped that once school started. I started kickboxing
and soccer because I needed something to help me stay in shape. Once I
started these sports since they are very intense my body went into what
I like to call shut down mode.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I
became so tired that I could even stay awake for five minutes after a
full nights rest. Then I actually started to become hungry, I had not
felt that in two years so it was a strange feeling. Anyway to make this
long story short I started eating right again. Then I was diagnosed
with epilepsy about 1 ½ years later. So the stress started all over
again, and the rest is history.</div>
<div class="MsoNormal">
<br /></div>
I
come from an extremely great home, my parents are amazing and my brother
grew up into a very remarkable young man. I would say we did really
well in our lives. Even after all of these things that have happened in
my life I still try to look on the bright side of things. I used to be
bitter but I’m not anymore, there is no point to be bitter. It’s taken
me quite some time to feel like this about life. In closing I would
like to say that there is hope and there is always someone willing to
talk to you regardless of if it’s someone close to you or someone who is
a complete stranger. Be prepared for people to judge you no matter
what but the people who won’t judge you and who will just listen are the
ones that will give you the best advice.Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-16044078473350444842013-05-06T11:01:00.001-04:002013-05-06T11:01:07.610-04:00More than one doctor's opinon...<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">This post is going to be a general going back to the basics post.<span style="mso-spacerun: yes;"> </span>It’s about getting a second and third opinion.<span style="mso-spacerun: yes;"> </span>These are so important at least in my opinion.<span style="mso-spacerun: yes;"> </span>Even though all 3 of my doctors diagnosed me with the same exact thing and prescribed the same medication (well the one doctor wanted to switch it) I’m glad I went for more than one opinion.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">As I’ve mentioned before about my horror story with Dr No. 1 I’m glad I went to two others.<span style="mso-spacerun: yes;"> </span>The reason being is not only did I get another opinion just to make sure I found a doctor that I was comfortable with and one that gave me hope.<span style="mso-spacerun: yes;"> </span>The first doctor had me take EEG’s then had be take the 48 hour EEG in the hospital and that was ok, didn’t have a problem with it up until he gave me my diagnosis and the way he acted.<span style="mso-spacerun: yes;"> </span>He scared my parents half to death and scared me as well.<span style="mso-spacerun: yes;"> </span>The worst doctor I’ve ever met.<span style="mso-spacerun: yes;"> </span>The second doctor I went to was the doctor in Columbia Presbyterian in NYC.<span style="mso-spacerun: yes;"> </span>He was so understanding and even though he gave me the same diagnosis his approach was so much better.<span style="mso-spacerun: yes;"> </span>He became my favorite neurologist.<span style="mso-spacerun: yes;"> </span>He sat my parents down with me and went over everything and convinced us that I can still live a normal life I just have to take precautions.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">The third doctor I only went to because going into NYC and having to take a full day off from work was becoming too much.<span style="mso-spacerun: yes;"> </span>He was a local neurologist at the local hospital and he was ok but I didn’t like that he wanted to completely switch my medication after I’ve been doing so well for so long.<span style="mso-spacerun: yes;"> </span>I told him I didn’t want to and that I would not switch because it was stronger and more side effects.<span style="mso-spacerun: yes;"> </span>If I can take a medication with less side effects and a smaller dosage and be fine then I don’t see why I have to switch.<span style="mso-spacerun: yes;"> </span>My theory is he just wanted more money for the fact that he prescribed a more expensive drug.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">I eventually went back to Doctor #2 because the third one’s office staff was horrendous.<span style="mso-spacerun: yes;"> </span>I don’t understand why people are so terrible.<span style="mso-spacerun: yes;"> </span>You work for a neurologist, you have people coming in who are absolutely terrified and you’re going to act like a high school employee working at the local super market who doesn’t care about customer service?<span style="mso-spacerun: yes;"> </span>The behavior there was unacceptable.<span style="mso-spacerun: yes;"> </span>Even though the doctor in NYC is so far and I have to take a day off plus the scheduling and getting a hold of the office/doctor is a chore I still prefer to go to him.<span style="mso-spacerun: yes;"> </span>Everything is all in one spot so if he needs blood work I walk down the hall or if he needs an EEG I go to a different floor.<span style="mso-spacerun: yes;"> </span>I like his approach with how he treats his patients.<span style="mso-spacerun: yes;"> </span>I only have to do this once or twice a year so I figure it’s worth it.</span></div>
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span style="font-family: Calibri;">In my opinion find the perfect doctor because when you have a condition like epilepsy or any other condition in general you need to feel comfortable with the person who is treating you.<span style="mso-spacerun: yes;"> </span>You have to feel as though you are being treated well because if you have a positive doctor who can even make the worst diagnosis not so bad keep that doctor around.<span style="mso-spacerun: yes;"> </span>You don’t want a doctor who is going to scare you and stress you out even more because there are ways to go about giving someone bad news.<span style="mso-spacerun: yes;"> </span>Of course no one wants a lie because when it’s something serious they want the truth but a few positive words can change everything.</span></div>
Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-15729526325740959872013-05-03T20:50:00.002-04:002013-05-03T20:50:45.953-04:00Wo shi huan!<div class="MsoNormal">
That right there is Mandarin, it means “I like.”
I’ve been trying to learn it at work because I work for an Asian company
and I want to learn the language. I’ve been trying my hardest and so
far, so good. I really like working with people from a different
culture because it makes life so much more interesting. I’m American by
birth but Polish by background, so I’m already part of two cultures and
now I’m learning a third. The Asian culture is very interesting. I
actually received gifts from four different coworkers this week. I
received a jade bracelet from my supervisor, a jade Buddha, female
Buddha, and rabbit (I’m year of the rabbit) from the girl whose
cubicle is next to mine, a necklace from my mentor aka my go to person,
and a candle from the girl who works in the same area as me but with
different products.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
It’s so nice
to receive gifts. I’ve never gotten a gift just because so I was
shocked. Plus it’s just the fact that they thought about me. </div>
<div class="MsoNormal">
<br /></div>
See,
there are decent people in the world still. I like to tell my stories
about my daily activities because I want to teach people with epilepsy
that it is ok to be different and if you use it in a positive way you
can achieve so much more. Plus, I do a lot to keep my mind off things
and even if it takes learning a new language. It gives me something to
stay motivated for and it gives me discipline. I highly recommend doing
something different (and safe of course)!Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0tag:blogger.com,1999:blog-7258919701879812518.post-49856945723260855102013-05-01T21:58:00.001-04:002013-05-01T21:58:28.144-04:00Am I always this happy?The answer to the question in the title of this blog is no, I am not always this happy. I say that because this blog is all about sharing my story and showing people how happy you can be and how normal you can be, but it is also ok to be sad and upset or even angry. Obviously not all the time, but sometimes you need to let out your emotions. <br />
<br />
Sometimes it really is ok to cry. It's better to let it all out then keep it bottled in which is what I used to do and that always ended badly because I would blow up on the wrong person or during the wrong situation. I still sometimes get down on myself whether it be the "normal people" problems or problems associated with my epilepsy. Sometimes it does really get frustrating because I can't do the things normal people do. I can't stay up until 7 am in the morning and be completely ok to go about my day, no I have to make sure I have enough sleep and my medication is taken on time. Living with epilepsy is twice the battle because you deal with your every day problems and your epileptic problems. <br />
<br />
Even though all of this does get me upset sometimes and I'm not always 100% myself I push through it. I have to, being happy with this condition is half the battle. Actually living with it is the other half. I know this happened for a reason and I'm embracing it. I think it actually might have saved my life. I'm still learning how to go about my days but it's working out for me!Anonymoushttp://www.blogger.com/profile/12028726830376332814noreply@blogger.com0